TeenHelp
Support Forums Today's Posts

Get Advice Connect with TeenHelp Resources
HelpLINK Facebook     Twitter     Tumblr     Instagram    Hotlines    Safety Zone    Alternatives

You are not registered or have not logged in

Hello guest! (Not a guest? Log in above!)

As a guest on TeenHelp you are only able to use some of our site's features. By registering an account you will be able to enjoy unlimited access to our site, and will be able to:

  • Connect with thousands of teenagers worldwide by actively taking part in our Support Forums and Chat Room.
  • Find others with similar interests in our Social Groups.
  • Express yourself through our Blogs, Picture Albums and User Profiles.
  • And much much more!

Signing up is free, anonymous and will only take a few moments, so click here to register now!


Disabilities Living with a disability, either physical or mental, can be both challenging and life changing. For support, questions and discussions relating to disabilities, post here.

Closed Thread
 
Thread Tools Search this Thread
  (#1 (permalink)) Old
friendscare Offline
Member
Welcome me, I'm new!
*
 
friendscare's Avatar
 
Name: Gabi
Age: 25
Gender: Female

Posts: 30
Join Date: February 1st 2011

going blind - February 3rd 2011, 12:24 AM

I hate this. Three years ago my parents took me to some fancy eye doctor and we found out that I have a genetic disease where you go blind called Retiniga Pigmatosa (sp?). I didn't really want to know this. Now i have to live with the fact that I am going blind and there is nothing I can do about it. I am scared, and feel like my friends just don't understand.
   
  (#2 (permalink)) Old
Member
Welcome me, I'm new!
*
 
sincerely-hers-truly's Avatar
 
Age: 25

Posts: 1
Join Date: February 2nd 2011

Re: going blind - February 3rd 2011, 05:19 AM

Have you gone to a different doctor for a second opinion? I don't want to raise any trouble, but a quick internet search tells me that there might be a surgery that stops the disease.

Aside from that, you are strong. You are a strong individual with infinite potential. You needn't be hindered by your sight. There are many options out there for people who are visually impaired. You might also want to see if there are any groups in your area of people going through the same kind of thing. It will help to meet other people who are in or have been in your shoes!
   
  (#3 (permalink)) Old
Dark-and-Twisty Offline
Member
Experienced TeenHelper
******
 
Dark-and-Twisty's Avatar
 
Name: Nicole
Age: 27
Gender: Female
Location: Iowa, USA

Posts: 734
Join Date: November 4th 2010

Re: going blind - February 3rd 2011, 05:32 AM

Hi,

I'm sorry you're going through this. I have to live with the fear that my retina could detach, too; because I was born with congenital cataracts and have since had implants. I have yearly screenings to make sure nothing is wrong.

Based on research, it appears that depending on how advanced your case is, you could have surgery. Did the doctor tell you that? I would strongly recommend, like the poster above, getting a second opinion or asking if there's anything that could be done to prevent or to reverse any damage.

Best wishes.


"You say you're all dark and twisty. It's not a flaw, it's a strength. It makes you who you are."

~ Derek, Grey's Anatomy
   
  (#4 (permalink)) Old
Kitty. Offline
Member
Jeez, get a life!
***********
 
Kitty.'s Avatar
 
Name: Kitty
Gender: Female

Posts: 6,269
Join Date: January 23rd 2010

Re: going blind - February 3rd 2011, 05:53 AM

Hey,

I'm sorry that you are going through this. It must be very difficult for you.

A google search told me that a daily intake of Vitamin A palmitate can postpone blindness for up to 10 years. I encourage you to ask your doctor about this and he/she can give you an amount that you should take daily. I also read that DHA can help as well.

There are also microchips, gene therapies, and much more things that could definitely be available in the future, so don't give up hope.
  Send a message via MSN to Kitty.  
  (#5 (permalink)) Old
friendscare Offline
Member
Welcome me, I'm new!
*
 
friendscare's Avatar
 
Name: Gabi
Age: 25
Gender: Female

Posts: 30
Join Date: February 1st 2011

Re: going blind - February 3rd 2011, 10:07 PM

Hey guys, thank you all. I have the dominant form of the disease, which they have not done as much research with. I have gotten two opinions, plus my regular eye doctor does yearly tests to track the progression of the disease. He has even showed me pictures of my deteriorating retina...pretty nasty...

My dad, uncle, and grandpa all have it and I have watched their sight get worse as I grow up, especially my dad's, he went from reading us chapter books, to now he has a guide dog and can't read at all.

Thank you so much for the support and helpful advice
   
  (#6 (permalink)) Old
*CatchingStars* Offline
Healing my soul
I've been here a while
********
 
*CatchingStars*'s Avatar
 
Name: Corri
Age: 25
Gender: Female
Location: Washington in 2 months

Posts: 1,157
Blog Entries: 3
Join Date: August 31st 2010

Re: going blind - February 3rd 2011, 10:10 PM

i understand what ur going throu i went blind i still have particail vision but i can lose it and it is scary but there is technology out there that will help you idk how old u are so i cant really give u to many opitons but i use so many neat things enlarged books to keep my vison and not stress my eyes there magnifiers even vi class at my school prepare so if u do go blind u will be prepare learn braille its fun to learn to if u need to pm go ahead i will help u thru it its not easy to go throu alone




Life is too

Short to spend

It at war with

Yourself.

Iím catching stars in the sky because I am fixing the soul within me. May it be from the heart a girl broke years ago or my soul simply repairing itself as it was shattered on my walk on this earth. May the stardust fill those cracks within my soul making me brand new, but never forgetting who I once was.


   
  (#7 (permalink)) Old
friendscare Offline
Member
Welcome me, I'm new!
*
 
friendscare's Avatar
 
Name: Gabi
Age: 25
Gender: Female

Posts: 30
Join Date: February 1st 2011

Re: going blind - February 4th 2011, 12:00 AM

Thank you very much corrina, I just might take you up on that offer soon.
   
  (#8 (permalink)) Old
MegaMadness Offline
Fight My Llama
Jeez, get a life!
***********
 
MegaMadness's Avatar
 
Name: Megan
Age: 24
Gender: Female
Location: Aussie Land

Posts: 5,564
Blog Entries: 16
Join Date: October 11th 2009

Re: going blind - February 4th 2011, 09:34 AM

I totally understand where you are coming from and all the emotions you might be experiencing. I personally don't have Retina Pigmentosa but I do have Glaucoma, caught early though, and it is treatable kinda so I don't understand completely though there is still a chance I could go blind in the future.And it gets me down sometimes and I get scared about it, but now I try to stay postive. Because loads of people who are blind still have great lives and are very sucessful. You can't let it bring you down. Maybe practise reading brail to help you get ready for the time where you do go blind. I hope this helped.


Come on boys, come on girls
In this crazy, crazy world
Youíre the diamonds, youíre the pearls
Letís make a new tomorrow
Come on girls, come on boys
Itís your future, itís your choice
And your weapon is your voice
Letís make a new tomorrow
Today
follow me please. I'll follow back. http://photographicjournal.tumblr.com/
   
  (#9 (permalink)) Old
*CatchingStars* Offline
Healing my soul
I've been here a while
********
 
*CatchingStars*'s Avatar
 
Name: Corri
Age: 25
Gender: Female
Location: Washington in 2 months

Posts: 1,157
Blog Entries: 3
Join Date: August 31st 2010

Re: going blind - February 5th 2011, 12:15 AM

your welcome if u need anything else just pm me anytime ill try my best to get back




Life is too

Short to spend

It at war with

Yourself.

Iím catching stars in the sky because I am fixing the soul within me. May it be from the heart a girl broke years ago or my soul simply repairing itself as it was shattered on my walk on this earth. May the stardust fill those cracks within my soul making me brand new, but never forgetting who I once was.


   
  (#10 (permalink)) Old
:)
Regular TeenHelper
*****
 
Berries and Cream's Avatar
 
Name: Elizabeth
Age: 22
Gender: Female
Location: California♥

Posts: 400
Join Date: August 11th 2010

Re: going blind - February 18th 2011, 02:41 AM

I'm sorry you're going through this. Remember to always stay strong and keep up your spirits during this difficult time. You do have so much potential in the world
Maybe you can join a support group where you can relate with others? Turn this around, hopefully, in a postive way. Talk to others that you trust and ask them to help you when you're having trouble. It's perfectly okay to ask for help. Read books with large font, ask for help from your teachers and let them know what is going on if they don't already know and maybe practice Braille. Please don't feel afraid because you are not alone Feel free to PM me if you want to talk


Laugh as much as you breathe
and love as long as you live
   
  (#11 (permalink)) Old
arepo Offline
Member
I can't get enough
*********
 
arepo's Avatar
 

Posts: 2,433
Blog Entries: 15
Join Date: June 7th 2009

Re: going blind - February 20th 2011, 06:30 PM

Hey there, there's always the option of fixing the problem, though sometimes that isn't entirely possible. Though there's always a chance, so maybe try consulting with your eye doctor again to see ways of preventing it from getting worse or delaying the worsening of it. Maybe even stopping it completely.

Though being blind or having impaired vision isn't stopping you from doing anything either, dear. Look here, it's a list of people that pursued what they wanted to with blindness or had done something great before becoming blind. So just because you have a higher chance of it doesn't mean that you can't be just as amazing as you are now! Some of those people were authors, inventors, painters, singers, musicians, poets, athletes, artists. Your vision definitely will not stop you from doing what you want to do, maybe you just have to do it a bit differently, but that doesn't mean you can't do it at all!

Take care, dear.


ďThere is nothing beautiful about the wreckage of a human being.
There is nothing pretty about damage, about pain, about heartache.
What is beautiful is their strength, their resilience, their fortitude
as they display an ocean of courage when they pick through the
wreckage of their life to build something beautiful brand new,
against every odd that is stacked against them.Ē ó Nikita Gill
   
  (#12 (permalink)) Old
Kate* Offline
Newsletter Tips Writer
Outside, huh?
**********
 
Kate*'s Avatar
 
Name: Katie
Age: 31
Gender: Female
Location: Ohio

Posts: 4,643
Join Date: January 6th 2009

Re: going blind - February 20th 2011, 11:29 PM

I have lost count of the number of things wrong with my eyes, at last count I think it was 6 or 7. I know what it's like to fear going blind, I live with the fear almost everyday and I've had 4 doctors throughout my life tell me that nothing can be done to fix the underlying problem. Even stem cells aren't treating it yet. I don't know exactly what it's like, but if you need to talk PM me.


Member Since: September 19, 2007
LHO: March 31, 2008- October 13, 2012

"Freedom is what you do with what's been done to you." Jean Paul Sarte
   
  (#13 (permalink)) Old
Lu82 Offline
HI EVERYONE!
Experienced TeenHelper
******
 
Lu82's Avatar
 
Gender: Female
Location: Planet Earth

Posts: 735
Join Date: March 27th 2010

Re: going blind - February 23rd 2011, 01:15 AM

Im sorry for what youre going through.Just stay strong i google the disease and apparently you can reduce the progression of the disease by a daily intake of 4.5 mg of Vitamin A palmitate and they also mention that recent studies have shown to a proper Vitamin A supplementation can postponed blindness for up to 10 yrs.And it also mentions something about retinal transplants and artificial retinal implants.



Guenhwyvar roared a fourth time and darted off through the grove, a black arrow aimed at the heart of doom.
   
Closed Thread

Bookmarks

Tags
blind

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




All material copyright ©1998-2018, TeenHelp.
Terms | Legal | Privacy | Conduct | Complaints

Powered by vBulletin®.
Copyright ©2000-2019, Jelsoft Enterprises Ltd.
Search engine optimization by vBSEO.
Theme developed in association with vBStyles.