TeenHelp
Support Forums Today's Posts

Get Advice Connect with TeenHelp Resources
HelpLINK Facebook     Twitter     Tumblr     Instagram    Hotlines    Safety Zone    Alternatives

You are not registered or have not logged in

Hello guest! (Not a guest? Log in above!)

As a guest on TeenHelp you are only able to use some of our site's features. By registering an account you will be able to enjoy unlimited access to our site, and will be able to:

  • Connect with thousands of teenagers worldwide by actively taking part in our Support Forums and Chat Room.
  • Find others with similar interests in our Social Groups.
  • Express yourself through our Blogs, Picture Albums and User Profiles.
  • And much much more!

Signing up is free, anonymous and will only take a few moments, so click here to register now!


General Health This forum is for any questions or concerns about your health and wellbeing.

Closed Thread
 
Thread Tools Search this Thread
  (#1 (permalink)) Old
Mirabelle Offline
Owl Whisperer
Average Joe
***
 
Mirabelle's Avatar
 
Name: Mirabelle
Gender: Female

Posts: 189
Join Date: March 23rd 2018

I have Rheumatoid Arthritis - April 8th 2018, 05:46 PM

Initially I was diagnosed with juvenile rheumatoid arthritis (JRA), but since I've grown older yet still a teenager, my doctor warns it could worsen as I get older. When the weather becomes damp over days, so the joint pain worsens. Today I had a severe flare up and had to wait 2 hours before my painkillers began working.

I am taking NSAIDs for the arthritis pain and to a degree they work, but my doctor says I may have to have oral steroids such as Prednisolone. Has anyone had experience of this steroid, please?

I take Omega 3 fish oil; that helps. Also massage which is lovely. Any other suggestions would be very appreciated, especially as towrds the end of this month and into May I begin touring with my band.

Belle <3

Last edited by Mirabelle; April 8th 2018 at 06:05 PM. Reason: Grammatical changes
   
  (#2 (permalink)) Old
Celyn Offline
~One Skittles Minion~

Jeez, get a life!
***********
 
Celyn's Avatar
 
Name: Holly
Age: 26
Gender: Female
Location: Wales

Posts: 5,456
Blog Entries: 151
Join Date: June 16th 2009

Re: I have Rheumatoid Arthritis - April 9th 2018, 06:20 PM

Hey there,

I don't have experience with JRA, but I have heard it can be very painful.

Are you able to get physiotherapy? A physiotherapist can help you with specialised exercises to help loosen your joints a bit. You might want to talk to your doctor about a referral for physiotherapy if you haven't already.

You might also want to check out this from the NHS on different treatments for rheumatoid arthritis.

Hope others can give suggestions too


HelpLINK and Live Help Officer
Feel free to PM me! Even if I canít help, Iím always going to listen <3
SKITTLIFY!

   
1 user(s) liked this post or found it helpful.
  (#3 (permalink)) Old
.:Bibliophile:. Online
PM me anytime!

TeenHelp Veteran
*************
 
.:Bibliophile:.'s Avatar
 
Gender: Just me

Posts: 16,455
Blog Entries: 1722
Join Date: January 18th 2009

Re: I have Rheumatoid Arthritis - April 9th 2018, 08:09 PM

I don't have experience with it but I know people who have it. I agree that physiotherapy is helpful. I also think that different things are going to end up working for you in regards to the pain. Not every single method will work. If you end up finding people who can suggest things it might be worth checking with your doctor. There might be things they know about your case that we do not and so they might have a better understanding of what is likely to work. However, I think there are some decent things out there to help cope with the pain such as massages and warm bath's etc.


|Lead Moderator|Newsletter Officer|
   
1 user(s) liked this post or found it helpful.
  (#4 (permalink)) Old
Tigereyes Offline
Member
I can't get enough
*********
 
Tigereyes's Avatar
 
Age: 23
Gender: Nonbinary
Location: USA

Posts: 2,078
Blog Entries: 1
Join Date: July 20th 2011

Re: I have Rheumatoid Arthritis - April 9th 2018, 11:46 PM

I have been on prednisone (very similar to predisolone) before, although not for RA; prednisone and prednisolone are common temporary treatments for many autoimmune diseases. Steroids are a relatively short term treatment, but they can be very helpful for symptoms, although there can be significant side effects. I personally don't remember experiencing side effects. I recommend getting general information about prednisolone from your doctor before starting treatment, and ask any questions you have. And be aware that you might need an additonal long term medication after treatment with steroids. Feel free to pm me if you want to talk more about this!


"Just open your eyes and see that life is beautiful..." ~Sixx:A.M.
   
2 user(s) liked this post or found it helpful.
  (#5 (permalink)) Old
Mirabelle Offline
Owl Whisperer
Average Joe
***
 
Mirabelle's Avatar
 
Name: Mirabelle
Gender: Female

Posts: 189
Join Date: March 23rd 2018

Re: I have Rheumatoid Arthritis - April 10th 2018, 11:18 AM

I am very grateful to the three of you offering suggestions for my ongoing condition. Good news is I'm taking autoimmune suppressants for what was once diagnosed to be juvenile idiopathic arthritis, or 'JIA'. Now I am older it's classified as rheumatoid arthritis so am learning to live with it. I have to.

Celyn, thank you for that link. My doctor put me on a short course of enteric coated oral prednisolone, but its side-effects are dreadful. At night I've become hyperactive, my sex drive has increased, and I've been crying a lot. All this is the steroid's side effects. I'll be relieved to finish them! If they help build me up though, then all good. But I'll see.

I'm having physiotherapy and it's being wonderful.
I'm having warm baths with good old fashioned Epsom Salts.

So my career plan is do my music/performing as much as I'm able so by the time I'm older, I can be working in my other business, recording. My family have a recording studio and mobile cd/dvd production which is being flown out to Majorca with me. Throughout May I'll be back in my country and hopefully by then my body will be more able to cope pain-wise, but let's wait and see. Next week, arthritis pain allowing I will be recording my 5th solo album. News from my music agent, over 280,000 copies of my 4th solo album were sold in Spain and France.

Thank you so much for your help. I appreciate it so much.

~Belle
   
  (#6 (permalink)) Old
.:Bibliophile:. Online
PM me anytime!

TeenHelp Veteran
*************
 
.:Bibliophile:.'s Avatar
 
Gender: Just me

Posts: 16,455
Blog Entries: 1722
Join Date: January 18th 2009

Re: I have Rheumatoid Arthritis - April 10th 2018, 06:19 PM

Hey there,

I am sorry to hear that you are struggling with the side effects. I have been on pendisone ( I thought prendisolone was similar but wasn't 100% certain) and the side effects are awful. I know they used to make me quite sick and depressed but I usually wasn't on them too long. I don't know what your treatment course is but hopefully reminding yourself that the side effects will go away will help. I know that used to help me cope with having to be on steroids.

I am glad that you are finding physiotherapy helpful.

Best regards.


|Lead Moderator|Newsletter Officer|
   
  (#7 (permalink)) Old
Mirabelle Offline
Owl Whisperer
Average Joe
***
 
Mirabelle's Avatar
 
Name: Mirabelle
Gender: Female

Posts: 189
Join Date: March 23rd 2018

Re: I have Rheumatoid Arthritis - April 11th 2018, 08:31 AM

Quote:
Originally Posted by ~Abibliophobe~ View Post
Hey there,

I am sorry to hear that you are struggling with the side effects. I have been on pendisone ( I thought prendisolone was similar but wasn't 100% certain) and the side effects are awful. I know they used to make me quite sick and depressed but I usually wasn't on them too long. I don't know what your treatment course is but hopefully reminding yourself that the side effects will go away will help. I know that used to help me cope with having to be on steroids.

I am glad that you are finding physiotherapy helpful.

Best regards.
I've just finished another physiotherapy session from a visiting clinician; I feel very good!

I've been careful with my food intake, but those prednisolone tablets have had me hyperactive at night and interfered with my sex drive, so I will be very relieved once the 7 day course of these beastly things are done and finished with. I feel physically stronger and I am eating more, but that is caused by those damned steroids. It's just a case of my being careful, and building myself up ahead of my band's concerts starting soon.

I'll keep you and everyone updated. Thank you so much!

~ Belle
   
  (#8 (permalink)) Old
Mirabelle Offline
Owl Whisperer
Average Joe
***
 
Mirabelle's Avatar
 
Name: Mirabelle
Gender: Female

Posts: 189
Join Date: March 23rd 2018

Re: I have Rheumatoid Arthritis - April 25th 2018, 05:39 PM

Just a brief update here, I was prescribed a new NSAID which has made a very good improvement on the joint pain.

A close friend of mine in Canada suggested I consider discussing with my home doctor the possibility of trying a biological medicine called Humira.

Biologic medicines help treat the autoimmune aspects of arthritis, and can lead to remission if used properly. They're expensive, but it's worth thinking about, especially since I want to be in top shape to continue my performing career. I already have good medical insurance that would pay for this or, contribute significantly. So once I am home again, I'll see my doctor and discuss it further.

Thank you everyone for your ongoing support. It means so much to me.

Belle <3
   
  (#9 (permalink)) Old
Tigereyes Offline
Member
I can't get enough
*********
 
Tigereyes's Avatar
 
Age: 23
Gender: Nonbinary
Location: USA

Posts: 2,078
Blog Entries: 1
Join Date: July 20th 2011

Re: I have Rheumatoid Arthritis - April 25th 2018, 09:42 PM

Humira is definitely an option worth asking your doctor about. I'm currently taking this medication (and have been for over a year) if you have any questions. Humira is supposed to be a good treatment for RA, as it was specifically developed for RA. As far as cost, if your insurance doesn't cover it enough, there's usually a Humira card that lets you get the medication for $5 copay per month.


"Just open your eyes and see that life is beautiful..." ~Sixx:A.M.
   
  (#10 (permalink)) Old
Mirabelle Offline
Owl Whisperer
Average Joe
***
 
Mirabelle's Avatar
 
Name: Mirabelle
Gender: Female

Posts: 189
Join Date: March 23rd 2018

Re: I have Rheumatoid Arthritis - April 26th 2018, 12:06 PM

Quote:
Originally Posted by Tigereyes View Post
Humira is definitely an option worth asking your doctor about. I'm currently taking this medication (and have been for over a year) if you have any questions. Humira is supposed to be a good treatment for RA, as it was specifically developed for RA. As far as cost, if your insurance doesn't cover it enough, there's usually a Humira card that lets you get the medication for $5 copay per month.
Thank you so much for this. I will be asking questions about Humira, so thank you again.
   
Closed Thread

Bookmarks

Tags
arthritis, rheumatoid

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




All material copyright ©1998-2018, TeenHelp.
Terms | Legal | Privacy | Conduct | Complaints

Powered by vBulletin®.
Copyright ©2000-2019, Jelsoft Enterprises Ltd.
Search engine optimization by vBSEO.
Theme developed in association with vBStyles.