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Polycystic Kidney Disease - May 11th 2010, 01:44 AM

There's over 50% chance that I have polycystic kidney disease. It's hereditory, and my mum, uncle, grandma and my little brother have it/have had it before they died. I went to the doctor for contraception and found out that I have very high blood pressure (152/111), which is closely linked with this kidney disease. my doctor is sending me for a kidney scan, urine tests, blood tests, and more blood pressure checks.
I'm wondering if anyone else has it or knows anyone else who has had it? I'm not really that worried about anything happening yet as it doesn't usually cause problems for several years until you're in your 40's. But I just wanted to see if anyone else has any experiences with it as the only thing I've experienced is seeing my mum wasting away before she had her kidney transplant and my grandma and uncle both dying from things caused by the kidney disease. In a sick way, I'm kind of welcoming it to be honest - I've wanted to die for such a long time that this would give me a reason to do so... Ugh, my head is so messed up atm
So yeah, any experiences, advice, guidance?
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Re: Polycystic Kidney Disease - May 11th 2010, 10:32 PM

I have it, it doesn't actually cause that many problems if it's closely controlled . My Mum, Grandma, 2 Brothers and most of my Grandads Brothers have it. All except my brothers have had transplants, they are all fine now and were all the way through they found it early and closely monitored them with bloods and urine and blood pressure. If it does cause high blood pressure, i think theres tablets that can controll that. Anything else that it causes they will controll as much as they can. It shouldn't effect you until your older anyway

I've personally had no experience with it, but all i got told was avoid smoking, Anti-inflammatories such as ibuprofen and don't drink to much.

Hope things go well

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Re: Polycystic Kidney Disease - May 11th 2010, 11:04 PM

I have a large chance of getting it, my dad has it, my grandma has it, the majority of my aunts and uncles on my dad side have it and one uncle needed a transplant.
From what I've heard though you can manage with it if it's found early enough, and you'll probably be put on some sort of medicine to keep your blood pressure down as well.
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Re: Polycystic Kidney Disease - May 12th 2010, 10:04 PM

Thanks guys, It's nice to know I'm not the only one who's had a family history of it. My mum said that if you manage it, it'll be a lot longer until it's gets bad enough for you to need a transplant as her brother didn't look after himself and he died in his early 40's and she had a transplant 3 years ago and is now 51 and doing fine =]
I think I just needed to hear that there were other people going through similar things to me. Obviously if I do have it, I'll probably quit smoking and sort out my drinking and quit doing drugs and eat healthy and all that - I'd rather spend as long as I can doing what I want and not being ill (Y)
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