Support Forums Today's Posts

Get Advice Connect with TeenHelp Resources
HelpLINK Facebook     Twitter     Tumblr     Instagram    Hotlines    Safety Zone    Alternatives

You are not registered or have not logged in

Hello guest! (Not a guest? Log in above!)

As a guest on TeenHelp you are only able to use some of our site's features. By registering an account you will be able to enjoy unlimited access to our site, and will be able to:

  • Connect with thousands of teenagers worldwide by actively taking part in our Support Forums and Chat Room.
  • Find others with similar interests in our Social Groups.
  • Express yourself through our Blogs, Picture Albums and User Profiles.
  • And much much more!

Signing up is free, anonymous and will only take a few moments, so click here to register now!

General Health This forum is for any questions or concerns about your health and wellbeing.

Closed Thread
Thread Tools Search this Thread Rate Thread
  (#1 (permalink)) Old
LlamaLlamaDuck Offline
Llama Lover/Skittle Minion
Jeez, get a life!
LlamaLlamaDuck's Avatar
Name: Louise
Age: 27
Gender: Female
Location: Scotland

Posts: 6,044
Blog Entries: 295
Join Date: July 14th 2009

Marfan Syndrome - November 26th 2011, 10:53 AM

My friend was asking me about this earlier and I've never heard of it. Obviously google is a good option but the internet is so contradictory sometimes.
So I have some questions for you.

Do you or anyone you know have Marfan Syndrome?
How old were you/they when diagnosed?
What, if any, symptoms do you/they have and in what way do they affect your/their life?

I realise it sounds a bit odd but any answers would be appreciated.

Throw those curtains wide
One day like this a year would see me right

We are the rainbow
Or click here for some grovelling.
  (#2 (permalink)) Old
Lottie Offline
Retro TH'er- since 2007.
Regular TeenHelper
Lottie's Avatar
Name: Lottie
Age: 30
Gender: Female
Location: Iraw!

Posts: 378
Blog Entries: 269
Join Date: January 5th 2009

Re: Marfan Syndrome - November 26th 2011, 01:09 PM

Well it's an inherited condition (3/4 of all cases) that affects the connective tissues however there is one type that doesn't require either parent to be carriers (1/4 of all cases). It can affect the blood vessels supply the heart, skeleton or eyes. Most are diagnosed in the teens/early adulthood. It usually is mild but can cause more serious problems- especially with the type that affects the heart.

I've only met someone with this when I worked on an eye clinic and looked it up as i'd never heard of it! But this information ^ I got from the ophthalmic consultant.

Symptoms include:
being tall
being slim
having long, thin arms and legs
having loose and very flexible joints
small bottom jaw
high, arched palate (roof of the mouth)
deep-set eyes
flat feet
breastbone (sternum) that either protrudes outward or caves inward
crowded teeth
Dural ecstasia
Short sight
stretch marks
problems with all valves
problem with the aorta.

Now depending on what type of Marfan's you have will depend on what symptoms you have! So depending on the symptoms it'll depend on how it affects the pts life. Most are able to continue with a normal life- but in order to help it's suggested that a healthy diet and exercises can help prevent it having a significant impact on your life.
  (#3 (permalink)) Old
Never Forget Hope
I can't get enough
escape_thereal_world's Avatar
Name: Kelly
Age: 29
Gender: Female
Location: Charleston, SC

Posts: 3,097
Blog Entries: 98
Join Date: January 7th 2009

Re: Marfan Syndrome - November 26th 2011, 01:27 PM

I don't have any experience with this, but there are some reliable websites. I'm going to link 5 websites that are well trusted and reliable among the doctoral community.


The second one is a website dedicated to that disease only, which might be helpful. Most have forums and communities on there, which you may want to check out.
Closed Thread


marfan, syndrome

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Rate This Thread
Rate This Thread:

Posting Rules
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

All material copyright 1998-2020, TeenHelp.
Terms | Legal | Privacy | Conduct | Complaints | Mobile

Powered by vBulletin®.
Copyright ©2000-2020, Jelsoft Enterprises Ltd.
Search engine optimization by vBSEO.
Theme developed in association with vBStyles.