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Polycystic Ovary Syndrome (PcOS) Help - July 8th 2017, 09:22 PM

First of all, forgive me if I am posting this in the wrong board. I will understand if it gets moved. Also, this is a tiny bit graphic so please please please forgive me for that. I am just in desperate need of help.

I have been diagnosed with Polycystic Ovary Syndrome since I was 17 and since 2009 I have gone untreated for it. For a few months now I have noticed an significant amount of weight loss which has been helping my menstrual cycle to be a lot more regular but at the same time a bit irregular.

How may I explain? Since about January to April or May I was having my periods around the 11 or 14 of the month but since last month it has been a bit out of wack. They are either coming early, or I am over bleeding throughout the month and to make matters worse there are times that when I go to the bathroom to do.... number two, I start bleeding vaginally.

At this moment, I am having health insurance issues. I'm on disability (Medicaid) and I am unsure if I am getting a insurance card sent through the mail or if the Medicaid card that I have since 2014 or 2015 is still valid (even though I had another insurance supplemented by my Social Security Disability). This is what has me on a standby position on the whole going to a doctor thing. I know I need to get myself checked.

As a matter of fact, I am getting married 20 months away from now and my fiance and I talk so much about having kids and I will be so heartbroken and devastated if I am told "Sorry ma'am, but you can't concieve" or "We have bad news, your PCOS has now become cervical/uterine cancer," which I have heard could happen, unfortunately.

Please help. I'm in tears as I type this. I haven't even told my fiance about how this situation has me so scared. I want a family. I want to be a mother, which I know I would be a kick ass one and I don't want him to be a widower at a young age.



   
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Re: Polycystic Ovary Syndrome (PcOS) Help - July 8th 2017, 11:27 PM

I am so sorry to hear about what you are going through.

I know you said you are having insurance issues right now but is there a Planned Parenthood around you that you can talk to in the meantime? Normally they work on a sliding scale type of thing so if you call them and explain your situation I'm sure they can get you in.

Everyone is different but my sister has PCOS and also has a four year old daughter. She was diagnosed after her daughter was born so I'm not sure how long she's had it though. While fertility DEFINITELY can be an issue with PCOS, there are fertility specialists available when you get your insurance sorted out, and there's still no harm in trying in the meantime.

Does Medicaid have a number you are able to call to ask if you're getting a new card?

One thing that has helped my sister is being on birth control, which obviously won't be helpful if you're trying to have a family, but perhaps it's something you can see about in the meantime before you're ready to start the family.

Weight loss definitely can help with POCS though. Try and take care of your weight as much as possible without doing anything unhealthy and if at all possible try and get on a diet/exercise routine.

It definitely is scary though and I would talk to your fiance about it. He loves you and cares about you and this is something you can go through together. You don't have to be alone.

Do you have any friends or relatives with POCS? It may help to have someone to talk to, or if not maybe an online support group?


   
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Re: Polycystic Ovary Syndrome (PcOS) Help - July 9th 2017, 12:08 AM

I am not 100% sure if I have relatives with PcOS, though my mom has told me I do. Maybe I don't remember who in my family has it. I could try the support group thing; perhaps get a bit of help from them.

I took a look at the Medicaid card I have and unfortunately what I have is a Medicaid ID card, not an insurance card. I am definitely calling DCF (Department of Children and Families) and see about the insurance.

I think I might have a Planned Parenthood or a pregnancy clinic nearby. My fiance's mom actually volunteers at a local pregnancy clinic. Maybe I should talk to her about my situation and see if she can help me out.

Giving it much thought, I have the feeling that what is going on with my body is that since I am losing so much weight; by eating healthier and exercising more, my reproductive organs are trying to adjust to the weight loss, therefore doing the over bleeding and messing the cycle a bit. I remember I went through this before. Still scared me and looked for help but then I ballooned in weight so bad that it messed up everything.

Thank you so much for hearing me out and helping me. Like I said, I am going to check on the status of my insurance and as soon as I have an insurance card, I will look for doctors.



   
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Re: Polycystic Ovary Syndrome (PcOS) Help - July 9th 2017, 12:11 AM

Quote:
[ I think I might have a Planned Parenthood or a pregnancy clinic nearby. My fiance's mom actually volunteers at a local pregnancy clinic. Maybe I should talk to her about my situation and see if she can help me out.
This would be a great idea! She can probably give you some great suggestions, and if not she may be able to point you in the right direction!


   
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Re: Polycystic Ovary Syndrome (PcOS) Help - July 9th 2017, 12:27 AM

I'm going to talk to her soon and see if she can help me somehow.



   
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Re: Polycystic Ovary Syndrome (PcOS) Help - July 9th 2017, 01:24 AM

My state has Medi-cal so it might be different but they have a website where you can look information up and they also have a contact number available. I did a quick search since you have provided your location and I found this: http://www.medicaidoffice.net/florid...id-office-mo10. However, a lot of the pages that came up were for DCF so they might be the best place to call. If they can't help you then they will probably be able to direct you on where to call.

The thing with PCOS is that it effects woman differently. Fertility issues are definitely a big problem but no two people seem to struggle in the same way. I don't have PCOS but I have some friends in real life and I also have one or two online friends who have it and their struggles with pregnancy have been quite different. So, I would try not to stress too much about fertility and work on figuring out what is going on with the vaginal bleeding.

In the meantime, I think you should definitely consider getting in with planned parenthood. They can at least do a check and make sure everything is okay and they might also be able to start working on figuring out how to get things back to normal.

If you need anyone to talk to feel free to message me.


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