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Iver Offline
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Does anyone else here have Cowden's syndrome? - April 16th 2009, 09:40 AM

Cause I could really do with some support right now!
You can chat to friends and family, and its all well and good, but they can't really truly understand what you've been through, what you're going through. Someone else who does would be really nice.



Hug soundly, laugh loudly, dance wildly, and be damn well determined!
   
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Re: Does anyone else here have Cowden's syndrome? - April 16th 2009, 10:23 AM

whats Cowden's syndrome?

(I'd rather hear your explanation than wikipedias)


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Re: Does anyone else here have Cowden's syndrome? - April 16th 2009, 10:40 AM

It's basically a mutation in your genes that means you dont have the tumour suppressor gene working properly, so cells dont know when to stop growing. Means you end up with a whole lot of benign tumours, and if your especially unlucky, they can turn cancerous. But, mine havent yet, so its all good! Just a major irritation in my life. I spend about an 8th of it at the doctors!


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Re: Does anyone else here have Cowden's syndrome? - April 18th 2009, 04:28 AM

wow, that sounds really unpleasant *hug*
maybe you could find a group on the web for people with Cowden's syndrome?
I found a few on this site.
hope this helps <3



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Re: Does anyone else here have Cowden's syndrome? - April 18th 2009, 12:53 PM

Thanks kimvia, I'll check those out! Much appreciated! I think the msn group has closed now though.


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