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Oregano Offline
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Venting - August 11th 2017, 05:12 AM

I hate how my illnesses make me feel very isolated. I hate how it has changed me. I miss feeling normal. I've stopped working. I've stopped going out. The only thing I really enjoy is TeenHelp and pen pals.. I get letters weekly and it's my only thing that keeps me going. I can feel myself spiralling down into the deep dark abyss.

I really want to study to become an artist, but I've been told by a dozen people that it's a waste of time but I really don't care. I just want to do something that I love. I was supposed to be doing teaching next week but I told them that I couldn't do it even though I really want to teach little kids. Chronic Fatigue + Fibromyalgia + Chronic Insomnia altogether is a literal pain in the ass.

Today I only got 39 minutes sleep and the whole week, it's been altogether 3 hours and 21 minutes sleep. I'm so exhausted and I don't know how I'm still functioning. I barely sleep. Most nights I'm just laying in my bed staring at the ceiling and next thing I know sun is shining through the window and I'm staring right into the sun and this repeats every single day.

Just venting here.


breathe. it's just a bad day, not a bad life.
   
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Re: Venting - August 11th 2017, 03:09 PM

Hey Delwen,

I am sorry you are going through a difficult time, I can't imagine having an illness taking its toll on me like that. Have you spoken to anyone about treatment that will make quality of life better for you? When it comes to sleeping, perhaps you can talk to a doctor about that; maybe they can prescribe you medication that will allow you to have a better night's sleep. Nobody should have to sleep a total of three hours every week.

   
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Re: Venting - August 12th 2017, 05:19 AM

Hey,

I am sorry you are dealing with so much. I am glad that you vented. I hope that it helped. I don't have a lot to suggest. I struggle with insomnia as well and there are times when I don't get much sleep in a three day period. It can be really hard to cope and I do not have fibromyalgia or chronic fatigue.

It really sucks when illnesses take over our lives. I hope with time things will get better for you. Have you found anything that helps? I think there might be some articles that were written about fibromyalgia that you can look at (if you haven't already) not sure if it will help.

If you ever need anything please feel free to message me!


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Re: Venting - August 14th 2017, 05:09 PM

Quote:
Originally Posted by Iridescent. View Post
Hey Delwen,

I am sorry you are going through a difficult time, I can't imagine having an illness taking its toll on me like that. Have you spoken to anyone about treatment that will make quality of life better for you? When it comes to sleeping, perhaps you can talk to a doctor about that; maybe they can prescribe you medication that will allow you to have a better night's sleep. Nobody should have to sleep a total of three hours every week.

I have my doctor but she doesn't believe that the illnesses that I have are real. I have a pain plan but I can only use it if I go to the hospital and that's another issue, the doctors and nurses keep sending me back home when I'm in need of some serious pain killers. I cannot win at all.

With the sleeping issue, the doctor won't prescribe me any sleeping tablets at the moment. I told her that I wasn't happy with anything and I wasn't happy with myself, so she will not give me anything. It's almost 3am, and I'm wide awake from the pain


breathe. it's just a bad day, not a bad life.
   
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Re: Venting - August 15th 2017, 07:24 AM

I don't know if this works for Fibromyalgia. There is a way to cure chronic pain if there actually is nothing wrong with the body, or if the pain is no longer helpful.

There's a professor who cured himself of chronic pain after reading about how others did it. It's kind of a new thing that neuroscientists are discovering works in certain situations.

There's more at his website:
http://hansmalab.physics.ucsb.edu/

Basically, in this new theory at least, there are always signals traveling from nerves up to the brain; it's the brain that decides if these signals are significant or not. Doctors have learned that when someone has a serious significant injury, the brain can rewire itself to be more sensitive of pain in that area of the body. The body itself may heal itself, but the pain may linger for no good reason.

So there are mind exercise techniques which can unwire the pain, essentially telling the brain that this pain is no longer significant. The details are too complex to explain here.

It takes 2 weeks before any change is noticeable, so one has to be very convinced and persevere to make this work.

A family member I know I'm trying to convince her to do these mind exercises to unwire the chronic pain she has, but she insists there has to be something wrong with her body, even though the doctors have checked her out thoroughly.

I guess it's such an abstract concept to some that they just aren't able to comprehend the idea and why it works.

Anyway have a look at the professor's website on curing chronic pain.

If it's keeping you awake and you're not sleeping that'll certainly cause all the other problems.
   
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