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ARTPOP Offline
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Cool DEoes anyone have Nf?? - September 9th 2010, 01:28 PM

Hi , I was just wondering if anyone on here had NF?
My doctor surgersted I go on a site like this to chat to others with Nf.

For those who don't know whatn it is :

NF2 - Non cancerous tumors along the spine and brain , affecting hearing , balence , sight and it can cause facial weekness and migraines.
I can't spell the word :s Sop I copied and pasted from Wiki (only the LOOONGG word) Neurofibromatosis

So contact me Please it would be nice to chat
   
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Re: DEoes anyone have Nf?? - September 9th 2010, 06:31 PM

Yes I do, but I have NF1


I was born with a genetic disorder called neurofibromatosis, it causes tumors to grow in my body on nerves,my spine,and under my skin. I have a tumor in the thalamus region of my brain. I also have heartburn,hypothyroidism and secondary adrenal insufficiency these are under control with medication.
I also have hip dysplasia and scoliosis.




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Re: DEoes anyone have Nf?? - September 10th 2010, 10:54 AM

Hey there,

I don't have Neurofibromatosis, but I know a lot about it. You're more than welcome to PM me if you would like to talk. (:

Marie.
   
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