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Thumbs up NF2 - December 1st 2010, 11:58 AM

Hi , I put this in the disabilties section because it causes hearing loss etc but if it belongs in the General Health area just move it

Ok , so do any of you out there have NF2? Or have you never heard of it and just wanna know more?

Well NF2 is a very rare condition where non-cancerous tumors grow on the nerves along the spine and on the brain.
Most commonly , the auditory nerve. (the one for for hearing)
Currently the figures stand at 1: 35000 in USA and 1:40000 in the uk.
It is a hereditry condition (if you don't jknow what that means , look it up)
But basically there are two types of NF , 1 and2 , if you have NF1 you can't pass on Nf2 and vice versa because they are seperate chromosomes.

Docs think they have found the NF gene which meand a 5-10 year wait for a possible cure.
Currently they can remove tumors if the are causing problems such as hearing loss.
About 4 people in the UK have a NF2 tumour removed per year.

Nf1 I don't know much about , but it is basically tumours that are visable.
If you'ld like to know more or have NF1 as is more common about 1:30000 Then lemme know
But you cannot catch NF , like I say it is hereditry.
But it can be a spontanious gene malfunction , what I mean is a baby can randomly have it O_O but the chances are slim to nothing.
If you have it , you habve a 50:50 chances of passing it on , but there will hopefully be a cure soon , a bit late for me , but hopefully if my kids have it , a cure for them. (Just to remind you , 10 years)

Like I said , talk to me if you wanna know more and others with it please PM me for details on my treatment.




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Re: NF2 - December 6th 2010, 10:48 AM

Hey there!

I think it's really good of you to post this thread. Definitely something I'd like to see more of. (: Keep strong and keep fighting it.
   
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