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Beckers muscular dystrophy - June 1st 2011, 04:00 PM

Hey

My friend recently told me about how someone in her family has beckers muscular dystrophy. I looked it up online and it sounds like such a terrible thing to have to deal with for the boy who has it, and for her and her family.

I just wondered if anyone has any advice on how I can support her through this? Since I've never had any personal experiences of things like this, I'm not really sure what to do. She says it's been getting worse this year too, I'm just not sure how I can help her, or what I can do.

Thanks for reading
   
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Re: Beckers muscular dystrophy - June 1st 2011, 04:20 PM

Hi,

If you've looked it up, I'm sure you realize that it's a problem that doesn't really come with a solution. There really is no known cure or treatment for it as such.
I encourage you to support your friend, and their family member, if you know them really well. Encouragement to socialize and make life happy and warm with love and minimum emotional distress is important.
Activity for the person is greatly encouraged as much as their capacity can give them. Being a constant support, cheering the family, or your friend up is a good idea. It is hard to deal with, but they have to remember that they should make every moment enjoyable for the person, instead of worrying or letting the pain affect close family and friends that it affect the person with the condition too.
Also, encouraging him to join support groups online or otherwise will be a great way to help cope with it, knowing that they are not alone, and supporting one another, like we do here on TeenHelp, will definitely do some good.
Take care,

-Kav.


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