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Anyone here develop epilepsy? -
Yesterday, 10:14 AM
I keep having seizures. I have been here for a while and had what I realized was my first (unwitnessed)seizure in January 2019. I have had seizures in the past year that were witnessed which let me know what these past mysterious events were. This past Sunday was absolutely awful. I had multiple tonic clonic/grand mail seizures. I was 26 when this started happening. I hate how many of my muscles feel pulled, still not feeling myself days later, and the embarrassment that comes with it
Re: Anyone here develop epilepsy? -
Yesterday, 04:51 PM
You definitely shouldn’t feel embarrassed about this as it is something you can’t control. I’m sure you wouldn’t laugh at someone who has a medical emergency in front of you, so I’d hope others will extend that to you. Do you think you could develop a plan with people you regularly interact with to help you during a seizure? Not everyone knows what to do (I wouldn’t fully know either). I understand not telling complete strangers, but say you’re hanging out with friends you may have one and need to be kept safe.
I’m assuming you see a doctor so I would definitely keep track of how often this is happening and what you experience so they can adjust your treatment plan if needed. If you aren’t seeing one I do recommend it. I just worry that things will end up getting worse for you or you’ll cause other damage or injury during a seizure. I don’t want to see you being hurt. There’s no shame in seeing a doctor or being treated for seizures. You wouldn’t shame someone for having a severe asthma attack or anaphylaxis for example, so there’s no shame in seizures.
The sun is always gonna rise up
You need to get up, gotta keep your head up
Look at the people all around you
The way you feel is something everybody goes through
Re: Anyone here develop epilepsy? -
Yesterday, 06:06 PM
You should definitely be consulting with a doctor. I know based on your previous posts, you're a little hesitant when it comes to medications. But medication to treat epilepsy can be lfie-saving. You could bump your head and get a concussion or choke on your saliva; and both could end up being fatal if you don't get the appropriate treatment.