[Beautiful_Disaster]

Hi everyone.

I've suffered with M.E since December, 2008.

I'm moderately-more so severely affected.

I rarely go out, I'm now in need of a wheelchair because it's that hard to walk.

I have a bath once a month, if that, because of how it affects me.

I am in bed for most of the day, I do get up a few times a day, but for short periods, ie; to go to the toilet, to go downstairs to get food/drink, to get my medication(s), etc.

Rarely I will go downstairs for the day and lie on the sofa, but that doesn't happen at all much anymore.

I'm on narcotics for pain relief, they don't help anymore, because of tolerance, so I've been trying to come off of them and intend to discuss other pain medications for pain relief.

There is no test for it, only elimination, so I've suffered a lot of grief from doctors, family members, because there is no "proof".

The symptoms I suffer from are...

fatigue, exhaustion, joint pain, muscle pain, widespread body pains, chest pains, aches over my body, sharp pains in my body, eye pains, headaches, noise and light intolerance, food intolerance's, alcohol intolerance, sore throats, lethargy, nausea, breathing problems, heart problems, balance problems, sleeping problems, shakiness, temperature irregularities, digestive problems, memory problems, concentration problems, trouble absorbing what's being said to me, trouble with speech, confusion, mental fatigue, basically brain fog, postural hypo tension, dizziness, vertigo, feverishness,

As you can see, I suffer from quite a lot of symptoms, obviously not all in one go, but these are the ones I've suffered with since developing M, and for the majority of them, I still suffer with daily.

Right now, I'm in the process of being confirmed with having M.E, but I was diagnosed with it last year, it just needs to be confirmed so they're doing more tests (repeating tests, actually).

Hopefully when it's confirmed, I'll have a lot more support and help with this illness.

I need it confirmed to fill in my DLA forms too, as I have no income due to the fact I can't work or go to college.

Does anybody else suffer from this awful, debilitating illness?

(I also want to make it clear that this illness is NOT just about fatigue, it is much, much more than that, it affects every system in your body, and fatigue may not be the most severe symptom, I know for me that sometimes I may not get up/go out due to the pain or other symptoms, though fatigue still is a symptom.)

Thank you for reading, take care.