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Conversation Between dropsofjupiter and annaa. (:
Showing Visitor Messages 1 to 3 of 3
  1. dropsofjupiter
    January 17th 2010 04:33 PM - permalink
    dropsofjupiter
    hi, its no problem at all (:
    mine went from 23 to 30 in about 6 months, so i guess we're kinda in the same boat, it is quite a big progression but its really not big enough progression to worry about much (:
    don't worry, you don't have to have the operation if you dont want to, in fact my doctor said that it was only really necessary at about 45-50 degrees at minimun and i would be much better without it.
    so far, no ones commented on what im wearing at pe apart from the teacher who was like you cant wear a tshirt under your pe kit (she thought it was a tshirt!) but now i dont wear it in pe because ive had my hours reduced to 16 so i take it off at lunch (:
    really dont worry, if you have to have one theres ways and means of dealing with it all, have you tried going on spinekids? its a website full of people like us, and it has a forum just like this with all sorts on it (:
    you'll be fine!!
    xx
  2. annaa. (:
    January 14th 2010 08:39 PM - permalink
    annaa. (:
    thankyou for the comment :]i found it very helpful, and im going to search the brace that you talked about :]
    my spine degree is growing about 5 degrees every 3 months, according to one of my doctors, but he said there can be a 5 degree difference in doctors (i was at a different hospital) but he measured my old xray and got about 33 degrees (which the new one said 35.1 i think) so its a few degrees every 3 months, is that alot for 3 months? they said they would usualy measure someone every 6 months though. i dont want to have the operation, or the brace really. the operation will leave a scar and the brace would leave.. well a brace. so when i get changed for p.e i might get a bit paranoid. but i like the idea of an hourglass figure :] i hate mine at the moment :/
    thankyou again :]

    anna, xx
  3. dropsofjupiter
    January 11th 2010 05:04 PM - permalink
    dropsofjupiter
    hi, i saw on a post that you have scoliosis and AS and I thought maybe I could help? I thought it would be better to reply on here because I never check my old posts lol (:

    well, I have scoliosis about the same as you (33 ish degrees I think) and I'm 15 years old so I've nearly stopped growing, but I was given a brace last summer. You say that having a brace would affect your AS, is this because you think that you would not be able to move? Well, if you have a Boston brace or a Milwaukee, then that may be the case, but I'm sure you would benefit from what I have which is the Spinecor brace, because you can move in it like you would normally, it just makes it a bit more uncomfortable thats all. I have it instead of the other ones because I do a lot of sport and with the hard braces your muscles can atrophy, and that would be disastorous for me. You might want to research the Spinecor, and I'm not going to tell you that it's nice (because I'm not going to lie!) but it could be a lot worse!! It's like a plastic belt with some tight elastic bands over your body. no one can tell i'm wearing it except me and it's made my body a nice hourglass shape haha.
    And you're 13, so you won't have long in it probably if you do get a brace remember, at our degree of curves surgery probably won't happen, so that's something good to think about
    please feel free to ask me questions, I'm not up on AS but I sure am a scoliosis expert! (sadly)!
    and also remember, if you live in the UK, ideas about scoliosis are a lot different in the USA; they use different braces more widely and tend to operate at lower curves.

    good luck (: please feel free to ask if you have a question (:
    katie xx



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